The Thyroid Project

Introducing The Thyroid Project

Metabolism.com presents the introductory patient interview for The Thyroid Project during which she describes the predicament of someone who has been unsuccessfully treated for hypothyroidism.

The American Thyroid Association clarifies public dissatisfaction with treatment of hypothyroidism.

In 2017 the ATA convened a symposium on treatment of hypothyroidism and determined that “it is important to describe the patient perspective regarding hypothyroidism treatment and to share it” with the medical community.

If Hypothyroid and Unhappy, Which Came First?

Medical specialists increasingly accept that some patients being treated for hypothyroidism continue to be symptomatic and “unhappy”. Experts however, are debating if the unhappiness not the thyroid condition came first.

Survey Reveals 84% Feel Doctors in US Overly Influenced by Pharmaceutical Industry

A large percentage of physician policy makers in the U.S. are tied to pharmaceutical company interests through large sums of money they are paid as "consultants".

Wall Street Journal Reporter Helps Bring Clarity to Thyroid Treatment Controversy

An article in the Wall Street Journal, written by columnist Melinda Beck, adds support to the growing movement for broader options for treatment of hypothyroidism.

Can a Blood Test Identify Those Who Need T3 for Proper Treatment of Hypothyroidism?

Research is described which hopes to find a simple blood test to predict who will fail to respond to traditional T4-only treatment of hypothyroidism; these patients may respond to Armour Thyroid instead.

Which Pesticides Create Precancerous Changes in Thyroid Cells?

Scientists at UCLA Medical Center led by Dr. Jerome Hershman investigated the potential for pesticides to damage the DNA of thyroid cells. Specific pesticides were found in everyday commercial products which could cause this DNA damage.

Highlights of the 2015 International Thyroid Congress

Update from the 2105 ITC including topics on thyroid cancer, treatment of hypothyroidism in pregnancy, effect of pesticides and iodine on thyroid disease, use of T3 plus T4 in treating hypothyroidism and more

Medical Specialists Fail to Sanction Treatment for Hypothyroidism Preferred by Patients

Medical societies, despite new scientific data, continue to refuse to sanction the use of hormone therapy preferred most by patients for the treatment of hypothyroidism. The guidelines produced by these physician groups warn that doctors who fail to adhere to these restrictive recommendations could go to jail or lose their medical license.

Public Support and New Research Promote Changes in Thyroid Treatment Guidelines

National guidelines against the use of Armour Thyroid to treat hypothyroidism, have been changed.

The mission of the The Thyroid Project is to encourage sharing of information and experience between the public and the medical community about the treatment of hypothyroidism (low thyroid function). For at least the past few decades there is a growing awareness of “something missing” in the way suffers of hypothyroidism are treated for their disease. Too many patients, as documented in an on-line study of 12,000 individuals conducted by the American Thyroid Association published in June 2018, (https://doi.org/10.1089/thy.2017.0681) , complain of persistent symptoms of hypothyroidism despite what their doctors believe is successful treatment with levothyroxine (brands include Synthroid, Unithroid, Tirosent, Levoxl). We believe something needs to be done to resolve this conflict between patients and their doctors.

The first step in our mission is to provide a series of 1 minute, raw and unedited, unrehearsed interviews with patients with hypothyroidism during their actual visit with an endocrinologist. All identifying features (that’s why no faces) have been removed to protect patient privacy. Signed consent was also obtained from each person shown.

 We hope these videos will be a good first step to opening the conversation between medical professionals and their patients about this serious and decades old controversy. In our introductory interview we share the experiences of a typical person caught in this sad predicament.

 

Patient 1

Patient 1

Since 1 Year on Treatment for Hashimoto Disease

“After one year of treatment with Levothyroxine I am still feeling tired, cold, have dry skin, muscle pains, have to keep my nails short. Fatigue is my main concern.” Alternative treatment with DTE was offered. Follow up with our patient and learn all about her experience with DTE treatment.

Patient 2

Patient 2

Suffering since 20 years of hypothyroidism

“Eight years ago I switched to DTE treatment and noticed an improvement I did not feel while on Levothyroxine. I was feeling much better, did not feel lethargic or amnesic any more. Due to insurance issues I had to go back for a short while to Levothyroxine treatment but the bad symptoms were back. That did not work at all for me.”

Patient 3

Patient 3

Diagnosed with low thyroid 10 years ago

“For years I took 25 mg of Levothyroxine, then my doctors increase the dosage to 225 mg as I was still not feeling better. When they switched me to DTE, for the first time in years I could feel my symptoms improving: no more heart palpitations, my sleep and concentration are becoming a lot better and I finally feel ‘normal’ again.”

Patient 4

Patient 4

Had her thyroid glad removed 14 years ago

“I’ve been on synthetic thyroid hormone since having my thyroid removed 14 years ago. Despite treatment, some of the symptoms persisted, such as dry skin, hair loss, broken nails and feeling tired and cold. I’ve added T3 three months ago and I’ve seen great improvements with regard to my mood, sleep, energy level and feeling better overall.”

3 + 3 =